First, I support myself. I believe every autistic person has
the right to decide which organizations, communities, and
resources are helpful for them. I also understand that people
have different experiences and strong opinions about Autism
Speaks.
I am not connected to or affiliated with Autism Speaks, and
this answer should not be interpreted as an official
endorsement of the organization. I am only sharing my personal
experience and perspective.
I recognize that Autism Speaks has a complicated history. The
organization has made statements, shared information, and used
messaging in the past that many autistic people found harmful.
I believe those concerns deserve to be acknowledged rather
than ignored.
At the same time, I also believe it is important to recognize
when inaccurate information is corrected and when people or
organizations learn from criticism and work toward doing
better. Not everyone understands everything immediately, and
growth requires listening, accountability, correction, and
compassion.
For me personally, Autism Speaks helped connect me with
information, resources, and support during an extremely
vulnerable time in my life. Before I received testing and
began to understand myself, I was feeling deeply lost and
suicidal.
During that time, I spoke with a mother whose autistic son was
connected with Autism Speaks. She took the time to speak with
me, listen to me, and help me understand myself and what I was
experiencing.
That conversation helped guide me toward the support and
resources I needed. It played a meaningful role in helping me
begin building a happier, healthier, and more fulfilling life.
I am grateful that someone was available to help me during a
time when I genuinely needed support.
Because of that personal experience, I would never speak
against the organization as though it has never helped anyone.
I know that the connection helped me, and I know that the
resources I received mattered in my life.
In my experience, Autism Speaks can be a helpful resource for
connecting individuals and families with autism-related
information and services. I believe it is important to focus
on how we can continue providing resources to underserved
communities, while also learning from previous experiences and
improving how autistic people are represented and supported.
Everywhere we go, we will find people and organizations that
are not perfect. That does not mean mistakes should be
dismissed or that people should be prevented from expressing
valid concerns. It means we can acknowledge what happened,
encourage accountability, and still recognize positive
resources and experiences when they exist.
My personal approach is to move forward with love and
compassion. I want people to receive the resources they need,
especially in communities where support may be difficult to
find. I believe we should focus our energy on creating positive
change, improving access, listening to autistic people, and
helping everyone become the best they can be.
That is my personal stand. I am thankful for the help I
received, while also respecting that another autistic person
may have a completely different experience or perspective.